Emergency Department Sickle Cell Care Coalition
Resources
- ACEP Frontline Podcast - "Sickle Cell Care Collaborative" with Dr. Jon Mark Hirshon
- ACEP Frontline Podcast - "Treating Sickle Cell Disease in the ED" with Dr. Caroline Freiermuth
- ACEP Frontline Podcast - "Sickle Cell Disease and the Pediatric Patient" with Dr. Patricia Kavanagh
- BloodStream Podcast – “Cheat Codes - #11 – WARZONE: the ER and SCD” with Dr. Patricia Kavanagh
- ACEP - NHLBI - OMH webinar - "Sickle Cell Disease Care in the Emergency Department: Improvement Initiatives and Ongoing Research"
- CDC - Videos: Transitioning from Pediatric to Adult Care
- Resources and Educational Videos from Duke University
- Sickle Cell Provider Training Video Series - Georgia Health Policy Center
- Medicaid and CHIP Beneficiaries with Sickle Cell Disease (SCD) Report
- Annals of Emergency Medicine supplement on SCD
- CMS Data Brief - September 2018 - "The Invisible Crisis: Understanding Pain Management in Medicare Beneficiaries with Sickle Cell Disease"
- National Academies of Science, Engineering and Medicine (NASEM) report on addressing SCD
- Sickle Cell Disease Research Protocols from Duke University
- AHRQ R18 Learning Collaborative - "Opportunity to Improve Care for Individuals with Sickle Cell Disease in Your Emergency Department"
- CDC’s “Healthcare utilization for vaso-occlusive episodes by people with sickle cell disease in California and Georgia, 2015”
- SCD Toolbox
- CDC - Sickle Cell Trait Toolkit
- Conversations in Equity Blog
- Steps to Better Health for People with Sickle Cell Disease
- Fact Sheet for Special Populations
- Fact Sheet for Stigma
- Infographic on Stigma
- Fact Sheet for Patients
- Be The Match – Patient Assistance Grant Program for patients before and after transplant
- Fact Sheet for Providers
- Sickle Cell Care Line
- Final Report Fact Sheet
