Emergency Department Sickle Cell Care Coalition
Resources
- COVID-19
- ASH – COVID-19 Resources - https://www.hematology.org/covid-19
- SCDAA – COVID Provider Advisory - https://www.sicklecelldisease.org/2020/03/18/sickle-cell-disease-and-covid-19-provider-directory/
- SCDAA – COVID Patient and Caregiver Advisory - https://www.sicklecelldisease.org/2020/03/17/health-alert-for-patients-and-caregivers/
- The American Society of Hematology recently released a checklist intended to assist in the evaluation of individuals with sickle cell disease (SCD) in the emergency department presenting with symptoms concerning for COVID-19 and/or complications of SCD, with SCD-specific considerations for evaluation and treatment. The checklist is available on the website, as well as Frequently Asked Clinical Questions on COVID-19 and SCD, and links to other SCD specific resources.
- ACEP Frontline Podcast - "Sickle Cell Care Collaborative" with Dr. Jon Mark Hirshon
- ACEP - NHLBI - OMH webinar - "Sickle Cell Disease Care in the Emergency Department: Improvement Initiatives and Ongoing Research"
- ACEP Frontline Podcast - "Treating Sickle Cell Disease in the ED" with Dr. Caroline Freiermuth
- ACEP Frontline Podcast - "Sickle Cell Disease and the Pediatric Patient" with Dr. Patricia Kavanagh
- AHRQ R18 Learning Collaborative - "Opportunity to Improve Care for Individuals with Sickle Cell Disease in Your Emergency Department"
- Annals of Emergency Medicine supplement on SCD (https://www.annemergmed.com/issue/S0196-0644(20)X0009-6)
- Be The Match – Patient Assistance Grant Program for patients before and after transplant
- BloodStream Podcast – “Cheat Codes - #11 – WARZONE: the ER and SCD” with Dr. Patricia Kavanagh
- CDC - Fact Sheets about ED use for SCD
- CDC’s “Healthcare utilization for vaso-occlusive episodes by people with sickle cell disease in California and Georgia, 2015” data brief shows that pain crises, which can be excruciating, are the most common reason patients with SCD go to the emergency department (ED) or hospital.
- CDC - Sickle Cell Trait Toolkit
- CDC - Videos: Transitioning from Pediatric to Adult Care
- CMS Data Brief - September 2018 - "The Invisible Crisis: Understanding Pain Management in Medicare Beneficiaries with Sickle Cell Disease"
- Conversations in Equity Blog
- Georgia Health Policy Center
- The HHS Office of Minority Health is excited to launch a new Sickle Cell Disease Training and Mentoring Program called STAMP. The goal of STAMP is to identify physicians who care for patients with SCD, and provide them with education on the basics of SCD care. There will be two sessions per month (Jan – June 2020) on varied SCD topics.
- MedPage Today article on the challenges of SDC management in the ED
- National Academies of Science, Engineering and Medicine (NASEM) report on addressing SCD (https://www.nap.edu/resource/25632/Sickle%20Cell%20Highlights_2020.pdf?utm_source=HMD+Email+List&utm_campaign=63a6c45c6e-ncpf-pw-Dec1_COPY_01&utm_medium=email&utm_term=0_211686812e-63a6c45c6e-180205573&mc_cid=63a6c45c6e&mc_eid=036af8c4d9)
- NIH Pain Consortium Centers of Excellence Educational Resources
- NIH Pain Consortium
- Pain Management Best Practices Inter-Agency Task Force
- Resources and Educational Videos from Duke University
- Sickle Cell Disease Research Protocols from Duke University
- SCD Toolbox
- Sickle Cell Provider Training Video Series - Georgia Health Policy Center
- Sickle Cell Care Line - Case management services to help patients with SCD and their families overcome practical, emotional, social and financial barriers
New Episodes in The Pulse of Emergency Medicine
We’re pleased to announce the addition of four episodes to our devoted series, The Pulse of Emergency Medicine on ReachMD. In partnership with Pfizer, the episodes seek to bridge the gap in Sickle Cell Disease education. Featuring leading experts, we’ll tackle common misconceptions of SCD, explore updates in triage approaches and discover strategies for treatment of sickle cell in patients.
